Resources

This is the start of a list of support and informational resources available online.  I have tried to avoid local resources – check your state listings and local hospitals for services available near you.  Many of the national sites have links to other resources and a place to search for local chapters by zip code.

Please let me know if the links need updating or if you have valuable, relevant sites to add to this list – I make no claim that this is comprehensive.

These sites are for general information purposes only.  They are not intended to substitute for the advice of your doctor or other healthcare professional.

APRAXIA
The Childhood Apraxia of Speech Association of North America (CASANA)

ASPERGERS SYNDROME
Asperger Syndrome Education Network

ATTENTION DEFICIT DISORDER or ADHD
ADDitude Magazine
Children with Attention Deficit Disorder

AUTISM
Autism Link
Autism Speaks – http://www.autismspeaks.org/
Parents of Autistic Children – http://www.poac.net/

CARDIAC HEALTH
Bench to basinet Program – http://www.benchtobassinet.org/
The Children’s Cardiomyopathy Foundation – http://www.childrenscardiomyopathy.org/
The Congenital Heart Coalition – http://chdcoalition.org/
The Congenital Heart Information Network – http://www.tchin.org/
Children’s Heart Foundation – http://www.childrensheartfoundation.org/
It’s My Heart – http://www.itsmyheart.org/
Little Hearts – https://www.littlehearts.org/
Mended Little Hearts – http://mendedlittlehearts.org/

CELIAC DISEASE
Celiac Disease Foundation – http://www.celiac.org/

CEREBRAL PALSY
United Cebral Palsy – http://www.ucp.org/

CHRONIC ILLNESS
Band-Aides and Blackboards – http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/
Caring Bridge – http://www.caringbridge.org/
Coping Club – http://copingclub.com/
Make A Wish Foundation  (look for your state’s site) – http://www.wish.org/
Parent to Parent USA – www.p2pusa.org
Teen Health FX – http://www.teenhealthfx.com/
The C. Everett Koop Institute at Dartmouth - http://geiselmed.dartmouth.edu/koop/resources/chronic_illness/
Starlight Children’s Foundation of America – http://www.starlight.org/programs/

CHRONS and ULCERATIVE COLITIS
Chron’s & Colitis Foundation – http://www.ccfa.org/
IBD University – http://ibdu.org/
I’ll Be Determined – http://www.ibdetermined.org/
UC and Chron’s – http://www.ucandcrohns.org/

EPILEPSY
Epilepsy Foundation – http://www.epilepsyfoundation.org/
Finding a Cure for Epilepsy and Seizures – http://faces.med.nyu.edu/

FOOD ALLERGIES
Food Allergy and Anaphylaxix Network – http://www.foodallergy.org/

JUVENILE DIABETES
American Diabetes Association – http://www.diabetes.org/living-with-diabetes/parents-and-kids/
Children with Diabetes – http://www.childrenwithdiabetes.com/
Grandma Sandy – http://www.grandmasandy.com/

Still working!